Resource library
Curated reading and video on building trust with communities in clinical research, plus Community Trust Lab tools you can put into practice. External links open at the original publisher.
67 resources
Trust: Overcoming Mistrust in Health Research | Full film
NIHR film for community groups and organizations: past harms, representation, and how to reopen the conversation about research. Highlighted by Chien-Chi.
The Trust Readiness Framework (Overview)
A one-page introduction to the six dimensions of institutional trust maturity.
Power Mapping Worksheet (Sample)
A preview of the anchor worksheet from the Embedded Partnership Toolkit.
State of Community Trust 2026
Our annual research report on institutional-community partnership trends.
Ethical Compensation Starter Kit
Principles and a planning template for compensating community partners fairly.
Repair Protocol Walkthrough
A recorded walkthrough of activating a trust repair process after harm.
Board Conversation Guide
Questions to bring institutional trust work to your board of directors.
Building Trust in Clinical Research: A Systems Approach to Ethical Engagement
Peer-reviewed PMC article on why trust and trustworthiness shape participant engagement, data integrity, and sustainable research outcomes.
Building Trust in Clinical Trials
Patient-facing SUPPORT Trial guidance on asking questions, safety, and what research staff should explain before someone enrolls.
Transparency and Protection in Clinical Research Trials
How UF Health Proton Therapy Institute approaches transparency and patient privacy throughout clinical research.
How to Build Trust in Clinical Research in Communities of Color
DIA Global Forum commentary on ending tokenism, meeting communities where they are, and keeping relationships continuous — not only at recruitment time.
Building Trust in Healthcare AI: Transforming Clinical Trials and Data
Talking HealthTech conversation on how trust is built — or lost — when AI enters clinical trials and health data.
Addressing Limited Engagement With Underrepresented Communities in Clinical Research
Applied Clinical Trials on shifting from enrollment targets to process measures designed with underrepresented communities.
Enhancing Minority Recruitment and Participation in Clinical Trials
Northwestern Medicine discussion of practical strategies for recruiting and retaining participants from minority communities.
Strategies to Improve Representation in AD Clinical Trials: Insights from the HABS-HD Study
Approaches from the HABS-HD study for improving representation in Alzheimer’s disease clinical trials.
SNMMI Clinical Trials Network
SNMMI’s Clinical Trials Network on standardization, site support, and clearing the operational barriers that keep imaging trials from getting off the ground.
Understanding Clinical Trials Is Key to Building Trust in Medicines
Kenya’s Pharmacy and Poisons Board on why regulated, publicly visible clinical trials protect patients and build confidence in medicines.
Building a Legacy in Clinical Research Through Trust
Regeneron on why a research legacy is built through patient trust and investigator partnership — featuring hematologist-oncologist Dr. Dipenkumar Modi.
Building Trust in Clinical Trials: Community Engagement Insights from Dr. Anthony Gittens
The Public Health Millennial conversation on community engagement as the foundation of trial trust.
How Merck Is Embedding Representation Into Clinical Trial Execution
Adrelia Allen on treating diversity as a design principle across trial planning, community engagement, and accountability — not a late-stage recruitment fix.
SCOPE Summit 2026: Elevating the Patient Experience in Clinical Operations
Summit coverage on putting patient experience at the center of clinical operations.
Improving Patient Retention in Clinical Trials
Amanda Moore, MSHS, on knowing the patient population and using simple accommodations so people stay through study completion.
The Clinical Trial Challenge
Pam Cusick and patient advocate Grace Charrier on a RPV survey of what would make trials more appealing in patient communities.
8 Best Practices for Increasing Diversity in Clinical Trials
Acclinate walkthrough of practices that increase diverse participation without treating communities as a quota.
Creating an Environment of Trust for Underrepresented Populations in Health Care
AJMC on the conditions — not slogans — that make underrepresented patients feel safe enough to engage.
New Technologies Enhancing Transparency Between Patients and Researchers
How tools that make protocols, progress, and results visible can close the transparency gap between researchers and participants.
Trust — Overcoming Mistrust in Health Research
Film addressing mistrust in healthcare and clinical research, especially in diverse communities, and why those voices have to be in the room.
Challenges Patients Face in Clinical Trials
Patient voices on the practical and emotional barriers that keep people from joining — or staying in — cancer trials.
The New Health Credential: Trust, Lived Experience, and Communication
Jennifer Hauser of Edelman on why expertise no longer guarantees trust — empathy, clarity, and lived experience now sit alongside credentials.
Trials and Trust: Offering Options Without Eroding Confidence
GU Oncology Now panel on introducing clinical trial options while maintaining trust when outcomes are uncertain.
The Importance of Trust and Diversity in Clinical Trials
Breast cancer patient stories on why trust and who is in the trial both matter for care.
Practical Strategies to Build Trust with Diverse Patient Populations
Osmosis event video on concrete practices clinicians can use with diverse patient populations.
Improving Inclusiveness and Representation in Clinical Trials
AJMC on making trial populations look like the people who will actually use the therapy.
Bridging Innovation and Trust with Artificial Intelligence
Applied Clinical Trials on using AI in research without sacrificing the trust participants place in the process.
Enhancing Clinical Trial Participation Through Community Engagement
VJ Oncology on community engagement as the path to broader trial participation.
Researchers and Patients — How to Build Trust and Collaboration?
Clinical and Translational Medicine podcast on the researcher–patient relationship.
Diversity-Integrated Research
Applied Clinical Trials on building representation into research design rather than bolting it on at enrollment.
Closing Gaps: Building Trust in Clinical Trials for Our Communities
FDA Oncology Center of Excellence Conversations on Cancer about closing gaps and building community trust in trials.
Ethical Clinical Trial Recruitment: A Guide to Clarity and Integrity
Keith Berelowitz of trialport on why information is not the same as understanding — and why clarity is an ethical obligation, not a marketing nicety.
How Clinical Trials Transform Myeloma Care: Awareness, Trust & Access
IMF’s Dr. Joseph Mikhael and SparkCures CEO Brian McMahon on awareness, trust, and access in myeloma research.
Clinical Trial Data Trust
Applied Clinical Trials on what it takes for patients, sites, and the public to trust trial data.
Routine Data in Clinical Trials: Building Public Trust
HDR UK FUTURES session on using routine health data in trials in a way the public can trust.
Building Trust in and Awareness of Opportunities to Participate in Clinical Trials
BIO session on raising awareness of trial opportunities while earning the trust to act on them.
Bridging the Gap: Advancing Equity Through Diverse Participation in Clinical Trials
HealthTree Foundation on advancing equity by widening who gets to participate in myeloma trials.
Barriers to Underrepresented Community Participation in Clinical Trials
Applied Clinical Trials on the structural and relational barriers that keep underrepresented communities out of research.
Trust: Overcoming Mistrust in Health Research | Trailer
Trailer for the NIHR film on rebuilding trust in health research, designed for community discussion.
Faster Enrollment ROI Through Community Trust
Short briefing on why community trust is not a soft extra — it is how enrollment and return on trial investment actually move.
What’s the One Thing You Wish More Doctors Would Share About Clinical Trials?
Cancer patients on the information they wish clinicians offered earlier and more honestly.
Building Trust in Real-World Evidence With AI and High-Quality Data
Oncology Data Advisor on pairing AI with high-quality data so real-world evidence can be trusted.
The Importance of Diversity in Clinical Trials
CISCRP video on why therapies for everyone require participants from diverse backgrounds and identities.
Data Literacy in Clinical Research: Enhancing Trust and Transparency
MRCT Center on data literacy as a trust-and-transparency practice for clinical research.
Expanding Access to Clinical Trials Through Community Partnerships
AJMC on community partnerships as the way to expand who can actually reach a trial.
Operational Realities of Building Representative Clinical Trials
What it takes in practice — sites, staffing, and relationships — to run representative trials.
Effective Interventions to Increase Clinical Trial Participation Among Racial and Ethnic Minorities
Jefferson MPH capstone rapid review synthesizing interventions that increase participation among racial and ethnic minorities.
How Collaboration Boosts Participant Recruitment
Trialfacts on researchers and recruitment partners working together to improve access, engagement, and retention.
The Patient–Site Relationship: Why It’s Crucial and How to Support It
Applied Clinical Trials on the patient–site relationship as the operational core of trust and retention.
Building Trust, Not Just Enrollment — Amy Leader, DrPH, MPH
Amy Leader on community trial success that is measured in trust, not headcount.
Building Public Trust in Clinical Research
Society for Clinical Research Sites on what public trust in research actually requires from sites and sponsors.
Improving Clinical Trial Diversity by Building Trust — Melanie Sheen, MD
Melanie Sheen, MD, on diversity that follows from trust rather than from a recruitment campaign alone.
Building Trust in Clinical Trials
Acclinate on starting trust work long before recruitment — in relationship, not in a campaign calendar.
How Do You Build Trust Around Clinical Trial Participation?
Cancer patients and advocates on what actually builds trust around the decision to join a trial.
How Trust and Education Improve Clinical Trial Participation — Dr. Frank Weinberg
Dr. Frank Weinberg on education and trust as the pair that moves participation.
Building Trust with Physicians for Clinical Research
Short on earning physician trust as a prerequisite for research at the point of care.
Building Trust and Transparency in Clinical Trials
Society for Clinical Research Sites on transparency practices that keep participant trust intact.
Overcoming Mistrust to Improve Clinical Trial Enrollment — Susan Vadaparampil, PhD, MPH
Moffitt Cancer Center’s Susan Vadaparampil on historical mistrust, community educators, and showing up when you are not recruiting.
Establishing Trust with Real People in Clinical Research
Scout Clinical on practical ways to build participant trust, improve retention, and treat people as partners.
How to Earn and Keep the Trust of Clinical Trial Participants
Medidata on patient-centric processes and communication that earn trust at enrollment and keep it through the study.